Tuesday, June 30, 2009

Another Day at Children's Hospital

Since all of Harper's genetic tests have had normal results, the next step is for her to have a CT scan of her inner ear to look for structural abnormalities. Even though it is just a simple, sedated procedure, I am much more nervous this time around compared to when she got tubes. She is old enough to realize that she is at the hospital or doctor's office and get really worked up. She even gets upset when we go to the HEAR Center for speech therapy and all they do is play with her there. I'm pretty sure that we won't know any results tomorrow. They usually send the report to the doctor's office who will call us with the results. I'll keep you posted!!

Be anxious for nothing but in everything by prayer and supplication with thanksgiving make your requests known to God. And the peace of God, which passes all understanding will keep your hearts and minds through Christ Jesus. Phil 4:6-7

Sunday, June 21, 2009

Not-So-Happy Father's Day

After eating a great Father's Day meal even before gifts or dessert, Luke and I made a little trip down to Children's Hospital. Harper has started shoving her high chair tray when she wants out or gets angry. While I was putting in her hearing aids, she got mad and shoved the tray. Well, somehow the tray wasn't latched and she went face first onto the tile. We were afraid that she had bit through her lip or chipped some teeth but couldn't tell because her lip immediately puffed out. We grabbed her up and took off to downtown.
All in all, the doctor said everything was okay. Her teeth weren't loose. She had bit through her lip but not bad enough to need stitches. The worst part was her frenulum (the part that attaches your lip to your gum) is caught between her front two teeth. He said it would come out on its own. She was laughing before we left and doesn't seem to be in pain at all.
Not a great way to spend your Father's Day.

Tuesday, June 9, 2009

Genetics Update

The genetics counselor called today to tell me that Harper's tests were normal. Good night, can they make up their minds? The ENT clinic told us that she tested positive for the Connexin 26 gene mutation. Then, the geneticist told us that she was only a carrier for the Connexin 26 mutation so they did further testing. He felt sure that one of the tests would come back positive. Unfortunately not. You may be thinking, "Why does this crazy woman want the test to be positive??" Well, it would really help to know what we are dealing with--if the loss will progress, what type of therapy works best, or if any other body parts (eyes, heart, kidneys) will be affected.
What next? Harper will have a CT scan of the head to check for any structural abnormalities. Poor Harper will have to be sedated again and that means getting to Children's super early on an empty tummy. After putting her through all this, I'm just hoping that we'll get some answers.

Saturday, June 6, 2009

Walk Walk Walk

Harper has really been making some progress with her walking. Her pediatrician told us that she would probably be a late walker because hearing loss and balance issues go hand in hand. Take a look at the bumps and bruises she's already gotten on her face! Go Harper Go!

Wednesday, June 3, 2009

Hot Head

It is finally June, and it is scorching outside!! I love summer and hope to get the pool going so we can swim this weekend.

That being said, I need your help! Harper is having to wear hats to keep her from pulling her hearing aids off and putting them in her mouth. It is WAY too hot to wear a hat in the middle of summer. Her poor little head is so sweaty when I take it off. Here's the ad from hannaandersson.com

Doesn't this look like Harper? Big cheeks and everything!

The audiologist only suggested this hat and toupee/wig tape to deter her from taking them off. We have been moderately successful using a stretchy headband but if she ever gets a hold of them OFF THEY COME! This is especially bad if we are in public and she happens to drop one.

Any ideas on what we could do???